FSHD UK

Team

// About fshd uk

Team

The success of FSHD UK is due to this group of people who have helped and continue to be dedicated to make things happen for FSHD patients in the UK.  Meet the FSHD UK group:

// Our Team

Trustees

Andrew McCulloch Graham

Trustee

Rajeshri Badiani

Chairperson, Trustee

Ruth Hereford

Trustee

// Our Team

Patient Leads

Alexa Gardyne

Glasgow, Scotland

Derek Fisher

University College London

Leonardo Koeser

Patient Lead: Access Workstream

Liz Williams

FSH-MD Support Group UK

Richard Pulford

Robert Jones Agnes Hunt, Oswestry

// Our Team

social media / it

Derek Fisher

University College London

Nicholas Gibson

Website / Social Media Management

// Our Team

clinicians

Dr. Emma Matthews

Reader and Honorary Consultant Neurologist

Dr. Enrico Bugiardini

Consultant Neurologist & Honorary Senior Research Fellow

Dr. James Lilleker

Consultant Neurologist and Honorary Senior Lecturer

Dr. Maria Elena Farrugia

Consultant Neurologist

Dr. Tracey A. Willis

Consultant Paediatric Neurologist

// Our Team

clinical therapists

Gita Ramdharry

Consultant Allied Health Professional; Honorary Associate Professor

Jon Street

Clinical Specialist Physiotherapist; Doctoral Fellow

Meredith James

Clinical Specialist Neuromuscular Physiotherapist

Pamela Appleton

Clinical Therapist

Robert Muni Lofra

Consultant Physiotherapist, Honorary Clinical Senior Lecturer

Sheryl Chatfield

Clinical Specialist Neuromuscular Physiotherapist

// Our Team

research

Alberto Malerba

Research

Fraser Philp

Lecturer in Physiotherapy

Ngoc.Lu Nguyen

Senior Research Fellow in Gene Therapy

Prof. Julie Dumonceaux

Professorial Research Fellow

Prof. Peter Zammit

Professor of Cell Biology

Yusuke Nishimura

Postdoctoral Research Associate in Muscle Proteomics

// Our Team

Advocacy

FSHD Registry

Advocacy

June Kinoshita

FSHD Society USA / World Alliance FSHD, Senior Director of Research and Education

MDUK

Advocacy